Jess

Before getting ME, I was very fit and healthy and had been working as a boatbuilder for over eight years. I had given up boatbuilding a few weeks before to apply for a Women’s Studies degree, and developed ME in July 1990 after a mild summer flu. Somehow I completed the degree, despite mild ME and pretending nothing was wrong, as I believe many people do – learning how to push my limits mercilessly just to keep up with everyday life…until I completely collapsed in 1995.

Up and about again now, I recently completed Jackie Carpenter’s course: Cohousing in Country Buildings

Read more …

Denise

I first became ill back in 1987 with a tummy bug and was eventually diagnosed with ME over a year later. Reading Jess’ notice in Interaction last year I was jumping up and down with excitement…. okay, so the jumping part was just in my head but that counts, right? I couldn’t believe someone else had a similar idea to mine born from my experiences of living with M.E. and the negative impact traditional housing had had on it.

Read more here

Gerry

I was diagnosed with M.E. about 2001. I’ve experienced moderate and severe stages, though I’ve been struggling on my own for the past 6 years. Places I’ve lived have often worsened the condition, not always being suitable environments for the sensitivities and limitations of living with a chronic health condition. I presently live in the region of Bristol.

Read more…

Ginny

It was the words ‘energy management’ that called out loud to me when I read the Resilience Housing post on the Facebook Digger and Dreamers page. I have struggled with high sensitivity to my environment in all its aspects from physical to emotional, and for years I thought I was broken because of this.

Read more …

. . .

River

I write this in my pyjamas because they’re a nice brushed cotton and some days I don’t manage to get out of them. I was diagnosed with M.E. in 2008, made some sort of recovery, (meaning living on a seesaw of adrenaline and fatigue,) then came down with total chronic fatigue and widespread pain in 2020.

Read more…

. .

Rose

Hi, 

My name’s Rose, I’m 65, live just outside London and have had ME since 1991.  For most of that time I’d say I’ve been ‘moderately’ affected… ie. neither well enough to work, nor ill enough to be totally housebound.  The last 2-3 years have scuppered that a bit though, as I was diagnosed with severe osteoporosis in 2019, resulting in multiple spinal fractures the following year.  The additional pain and mobility issues from that, on top of the ME, have really limited my capacity, though the arrival of a mobility scooter recently has got me ‘back on the road’, at least to some degree.  That taste of freedom has been wonderful… and gives me hope…

Read more …

Lindsay

I’m Lindsay, I’m a single mum to beautiful twins that love life and come with a few medical issues themselves. I also have adrenal fatigue that has turned into chronic fatigue. I know why, its chronic lack of support and too many expectations that mums can do it all. I’ll tell you a little of our story ….
Read more …